Society For People’s Action For Development (SPAD)

Project Theme

Health

Target Group

Others

Project Period

01 Apr 2015 - 31 Mar 2016

Share this on
Introduction

SPAD’s work has been mainly with poor and vulnerable communities. These communities have been deprived of their rights  due to their vulnerability, poverty, and lack of  organising them.  SPAD has been focusing these communities to increase  awareness  on their rights to claim their social, economic and gender rights, through building their own formations via groups.    These formations will be strengthened at the local level to challenge the public health system to make them accountable to the community needs.  Besides this  a federation of all the groups will be  formed to give a broader base for their presence both in their own community setting as well as in the government. One important step that will be taken is to build  community level networking to bring local /area level planning to be included as part of ward level  planning. 

 

About the Project: 

This project is the continuation of the last project cycle. 

Due to poverty and marginalization Dalit and Muslim communities are  further rendered vulnerable. They  lack access to essential services like health, education, sanitation and civic amenities. These communities depend on informal sectors for their livelihood like head loading, street vending, scrap collection, domestic help, sanitation work, waste picking, incense stick making beedi rolling etc. Further inequality exists in these communities largely because people have unequal access to society’s resources including health. There are enough studies to indicate that there is higher morbidity, lower life expectancy and higher infant mortality among Dalits compared to general population. 

 

The objective of the project is :

A. To create and strengthen a community-level platform of Dalit and Muslim women so that they  systematically improve access to their rightful entitlements and services.

B.  To increase the stake of the urban poor in governance through ward and sub-ward committees

C.  To advocate for Universal Access to Health at multiple levels and through multi-stakeholder networks

 

Results to be Achieved / Impact: 

1. The emerging of the Federation of  Women will be  the clear harbingers of change with the 7 wards of the BBMP. There will be enhancement of their ability to bring in an alternative and  distinct  collective leadership to address the key issues of the vulnerable communities. The community driven leadership will be an alternative to the existing self serving and unjust leadership.

2. Initiate meetings in 2 wards and there will be discussion on Ward Plan. This is to pilot an initiative of  community role in developing their own plan by bottom up approach, which will be need based and realistic.

3. State-level advocacy will result in improvements in some areas such as community monitoring and Access to Medicines. 

 

SPAD will facilitate processes whereby:

  • 40 Solidarity groups are assessed of their strength and weakness
  • 40 key leaders  of the federation will have clarity on the idological direction the group will be led and how they need to align with similar formations in the community
  • 40 leaders of the federation will have the ability to manage their organisation, communicate within the members, government department, local leaders, able to raise funds for their organisation
  • 12 meetings to  plan the federation's annual work, what issues that need to be prioratised, issues that need to be taken for advocacy.
  • The project staff and key leaders of the federation will participate in the city and state level JSA to link community issues for support and campaigning thropugh the net works
  • 6 community levels events  to high light the SGs and the Federation  to work in the future with  the existing CBOs in the locality on different communty issues.
  • 45 memebrs of the 7 community monitoring  committees will be trained to  work  with hospital team on the issues that are reported to them and also ability to  advocate them with the hospitals
  • 25 mobile exhibitions with in the hospital premises which will bring awareness to target women on ANC/PNC care which will  benefit 1500 women
  • 9 Interface meeting with 7 hospitals where 70  hospital staff and communtiy interface to discuss community health issues for redressal
  • 12 Staff and activists  review meetings conducted 
  • 2000  petition on 4 issues  to BBMP and State governament :  
  • 6 Project level  management  team  bi-monthly meeting. The board will be appraised of the project’s progress and  seek support.
  • 2 Capacity trainingon 74th Amendment to the constitution and other acts/bodies relevant to urban areas will be to  the  team  and the community leaders.
  • 12 Linkages meetings  of solidarity groups  with local level CBOs to get them  involved  Urban governance  
  • 4  Meetings for local level  planning with  local CBOs to generate local level planning for their area by the community  for bottom up approach
  • 3 Advocacy meetings with local level  on urban governance, and health with the support of the JSA Network members.
  • 2 Awareness meeting in 2 wards  for 200 members on patient rights  and sharing findings from other state experiences in private health sector. 

 

Prior Achievements:

  • Survey of Vani Vilas hospital with preliminary findings released.  This is the first of its kind done on a tertiary hospital, which has evoked interest by some key people within the hospital and government. 
  • Visibility of SPAD during NUHM rollout and selection of Federation members as ASHAs.
  • Group discussions and public event organized on patient’s rights and private health sector.  A brainstorming session resulted in some key action items relating to advocacy with the government, development of standards for ethical practice, use of social media for second opinions, sharing of experiences etc. and strengthening existing efforts in Bangalore city.
  • Federation has strenghtened and are able to take up different issues in the community and are recognized at different levels likethe community with local leaders, corporators, MLAs, BBMP officials, BBMP officials and state hospitals.  In one constituency, the local MLA is in regular touch with the leades of the Federation.  

 

Quotes of Beneficiaries

“The hospital authorities do not like us coming and monitoring their hospital or asking about corruption and ill-treatment. 'Who are you to monitor us?' they ask. But when they need help with any programme like polio, then they want us to come. When they need ASHA workers also (with the launch of NUHM), then they come to us.” - Member of JJR Nagar Referral Hospital Monitoring Committee.

“We go to private doctors and, because of our low awareness, they prescribe all kinds of treatments and we take loans to pay for them. We think of doctors as gods, but this is how they treat us.” - Garment worker in Valmiki Nagar. 

 

Case Studies/Human stories

A).   320 women were interviewed as part of the study of referrals to Vani Vilas hospital (VVH). Of them, only 11 had gone to VVH directly for delivery – the rest had gone to 1 or more hospitals and had been referred from there. The following case of a woman who went to 4 hospitals illustrates the range of reasons for women being referred or referring themselves:

Her first delivery was done through Caesarean. So Nelamangala Taluk hospital sent us to VVH. At VVH, we saw the rush and went to Rajarajeshwari Medical College. After conducting tests, they said they had no incubators or O+ve blood. So we went to BGS hospital. They said they could do a normal delivery, but the costs would be high. Then we went to KIMS hospital. There, they said they would need to do a C-section, but didn't have an ICU for the baby. So finally, we returned to VVH.

The woman subsequently delivered by C-section in VVH, but without any complications for her or her infant.

B).  Bhavani Nagar in GG Halli is located close to a lake and its inhabitants are vulnerable to vector-borne diseases. Last year, dengue was rampant and almost every household had one or more people afflicted. The Spoorthi solidarity group approached officials in order to clean up debris along the lake and conduct spraying. They also went to the Urban Family Welfare Centre (UFWC) to demand treatment for the disease. The UFWC began stocking medicines and a number of people got treated there free of cost. In spite of that, a number of the residents of Bhavani Nagar were hospitalized and there was a dire need for platelets. The solidarity group contacted the local youth group and explained the magnitude of the problem to them. The youth group them mobilized in the area and a number of young men came forward to donate blood.